Combating Sickle Cell Disease
Sickle cell disease is a severe chronic genomic disorder that affects more than 300,000 infants in sub-Saharan Africa each year, with 90% child deaths in Africa, and up to 14 million affected globally.
Sickle Cell Disease (SCD), is the world’s leading and vastly spread genomic disease with the largest infections existent in Africa. SCD affects the hemoglobin, resulting in very painful crises, recurring acute health bouts and potentially deadly impediments, it is a cause high mortality rates in children in Africa and even causes strokes in children of age 5.
Almost 50 million people globally have the sickle cell trait (SCT) and are consequently capable of transmitting this genomic hemoglobin disorder to their offspring. This disease, largely illustrative of the populace of Africa and its migration, limits the life expectancy of those infected if they do not obtain apposite SCD ‘management,’ it is opined that SCD related child deaths in Africa amount to 90% of SCD infected children with most children unable to exceed the age of 5.
As a ‘deserted’ and under-diagnosed illness, sickle cell disease is a global health distress that is nevertheless un-equably addressed by major international aid programs. The Global Initiative for Sickle Cell Anemia (GISA) is established to push for equable attention to sickle cell disease through creating global awareness, advocacy, and provision of relief support to persons infected and affected by SCD and thereby work toward making sickle cell disease a global health priority.
Our initiative focuses on creating global awareness, advocacy and SCD relief support while leveraging technology, people, participation and partnerships. We run projects such as the; Blood Run Marathon, Parliamentary Caucus, GISA Medical Fund, SCD Peer to Peer Clinics, to do this we work with Warrior Teams which we establish in each and every country from which we get individuals that take interest in establishing Warrior Teams and or work with volunteers across the globe. Founded in Kampala, we intend to globally create impact with our Warrior Teams on every continent.