GISA Guiding Principles - The Global Initiative for Sickle Cell Anemia - GISA

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Global Initiative for Sickle Cell Anemia Medical Fund
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GISA Guiding Principles

Establish SCD Emergency Response Teams to Help Persons with Sickle Cell Disorders when they Desperately Need Help


PEOPLE | PARTICIPATION | & PARTNERSHIPS

We are Creating an Active, Global, and Year Round Advocacy for Sickle Cell Disease Powered by SCD Communities and the internet of things.

PEOPLE
PEOPLE AT THE FRONTLINE

We rely on people by far to get our SCD response achieved; people are definitely our frontline partners in our mission to provide relief to persons living with sickle cell disease. Throughout all of our initiatives which are designed to be engaging and interactive among all our focus groups which include; people living with sickle cell disease, families of people living with SCD, persons with the sickle cell trait, and equally persons with neither the sickle cell trait or disease. We believe that creating awareness among all people will help reduce the prevalence of SCD. Working through the Legislative Fund, Warrior Teams, Walk With The Warriors, Blood Run Marathon, the Volunteer Program, SCD Advocacy and World SCD Day, Annual SCD Convention, National SCD Awareness Month, Warrior Ambassadors, Parliamentary SCD Caucas and SCD Peer to Peer; we draw in individuals of all kinds regardless of race, tribe, nationality, skin color, skill and all sorts of disparity. We are an equal opportunities provider and people stand at the very core of all our activities.
If you are interested in joining our of SCD Community, please register with us as an individual Member or as an organization Member or as both by clicking the following links Individual | Organization or email us at people@gisicklecell.org

We want to provide information, comfort, care and financial relief in times when it is most required to give a break through and save a life when that kind of help is mostly needed.

PARTICIPATION
PARTICIPATION AT ALL LEVELS

Participation is very pivotal to our operations; for everything we do under the sickle cell umbrella, we uphold participation, we encourage the participation of every stakeholder while anticipating a cure to SCD. Together with committed partners from the global sickle cell community which involves engaging our sickle cell community in thematic participation that strengthen us together. Interested stakeholders from the sickle cell community, civil society, public administration, research and international organisations share their knowledge, initiatives and work together along our programmes and initiatives which include; Legislative Fund, Warrior Teams, Walk With The Warriors, Blood Run Marathon, the Volunteer Program, SCD Advocacy and World SCD Day, Annual SCD Convention, National SCD Awareness Month, Warrior Ambassadors, Parliamentary SCD Caucas and the SCD Peer to Peer. We always take stock of The Global Initiative for Sickle Cell Anemia (GISA) to ensure that all national Warrior Team programs, initiatives and projects details are collected, planned and how they are implemented. The information on each partnership is gathered and compiled in a report made by each national Warrior Team that is submitted to the GISA directorate.

If you are interested in participating in any one of our programs, initiatives and projects, please inform us via participations@gisicklecell.org or join and or create a Warrior Team in your country to get involved or Volunteer at GISA

Creating Peer Led Learning Platforms that are Supported by Sickle Cell Clinics, Persons Living with Sickle Cell Disease and their families around the world.

PARTNERSHIPS
PARTNERSHIPS THAT ACTUALLY WORK

At all levels of participation, we work with partners and through partnerships we get to deliver on our goals, our operational culture is one that is greatly dependent on valuable partnerships that encourage people taking part at the frontline, and seeing to it that there is participation at all levels working in collaboration with value players globally in the sickle cell fratenity, with organizations that believe in our mission and objects. GISA partnership are intended to deal with participatory approaches to empower vulnerable groups in the mostly affected regions in order to enable their participation in the shaping the future of SCD responses globally. Our thematic participation partnerships are a know-how and scale-up targeted partnerships that help us strengthen participatory governance at GISA. Interested stakeholders from civil society, public administration, research and international organisations share their knowledge, initiatives and work together along our thematic areas of engagement through our programs, initiatives and projects.

Our overall guiding principles at GISA are; People, Participation, and Partnerships. We work with all kinds of people and encourage participation at all levels while building partnerships with likeminded establishments to get the word out and deliver our aligned goals.

We Value;

Festivity

Every other day could be a day of pain for people affected by sickle cells, we are aware that the psychosocial effects of SCD are greatly ravaging and diverse, We therefore value celebration and recognition for individual, personal and organizational milestones as well as all reasons that will make us have a moment of happiness.

Daring Spirits


SCD is a challenge that will make anyone that is affected a ‘Warrior’ and this is never by choice; We value people that are audacious and ready to take control of issues that keep them from living their full life, people ready to be innovative and willing to change the status quo.

Quality


We are faced with a phenomenal challenge and every new day is worth counting, it is why we value people that work toward delivering excellence in all they do and ensure that they bring the best out of those around them.

Virtuous Leadership


Great Leadership is what we need to get somewhere; we value leadership with initiative, leadership with ability to mobilize participation, resources and partnerships that are in the organizations’ best interest.

Reliability


We value personalities that ‘say, and do as they say,’ we are a results oriented global community geared to change the SCD status quo, to get to this, we depend on individuals that say and do – people that are truly reliable!

Attentiveness


We value people that are attentive to detail, that have the ability to communicate effectively and efficiently to trigger global discourse on SCD that sparks new ideas and drives us to new solutions to solving the challenges of SCD.

Enthusiasm


To deliver solutions for SCD, we need people that are passionate at the task before them; to this end we value people that are zealous and enthusiastic towards delivering GISA programs and initiatives.

Esteem


SCD at no point should be a reason for us to stop believing in ourselves, we value people that hold themselves in high reverence to be innovators, creators of solutions to the psychosocial and economic pressures that come with living with and being affected SCD, by this we must value people’s privacy, their physical space and belongings; and respect their variant viewpoints, philosophies, physical ability, beliefs and personality.

Personality-Development


We uphold, promote and value continuous development; We look up to personalities that seek to themselves and seek to understand how they can contribute better to impact the lives of people affected by SCD.
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GISA

The Global Initiative for Sickle Cell Anemia
Global Initiative for Sickle Cell Anemia Parliament Legislature Fund
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