National SCD Awareness Month - The Global Initiative for Sickle Cell Anemia - GISA

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National SCD Awareness Month

Creating a Global SCD Community that will Assist with the Organization and Development of Local GISA chapters, events and projects.


SCD Awareness Month
Global Initiative for Sickle Cell Anemia
The Global Initiative for Sickle Cell Anemia (GISA) in a bid to create awareness and impact our advocacy efforts, we seek that Warrior Teams around the world advocate through their governments for a month filled with media and physical awareness and advocacy campaigns to be gazetted every year to impact the lives of people affected by SCD through research and treatment of sickle cell disease.

Every year we come up with a theme that is shared with our Warrior Teams across the globe, our theme for this year is ‘Fighting Sickle Cells Together’, are used to direct specific focus of campaigns. We develop promotional and educational material that is shared across all our Warrior Teams and associates. We gazetted the month of July as our annual month of advocacy. During this month we hold a series of events that help empower us all at unimaginable levels.

We encourage every Warrior Team to organize a month of advocacy as a national effort to increase awareness about sickle cell disease and sickle cell trait.
 
Individuals and organizations can join our efforts to bring attention to sickle cell disease by engaging elected officials for declarations, hosting awareness events, distributing educational information to dispel the mythologies about sickle cell disease, and illuminating public spaces, buildings and landmarks with information about sickle cell disease!

Get along with us for a SCD discourse

We encourage you to take part in a video discourse on any of the following topics below, facilitators will be communicated as we approach an event, these discourses will be hosted on Zoom. Links to these dialogues will be shared here. Keep checking out on us here to get updates on these events.

July 4   :
Joining Efforts for Sickle Cell Disease - Founders of Sickle Cell organizations are encouraged to join this discourse
July 30 :
Leveraging Our Legislature for SCD Advocacy

August 2   :
The 12 Powers of a Warrior Team
August 23 :
Sickle Cell Disease Coalition meeting, Washington

September 6   :
Working With Your Blood Bank to Mobilize Blood During COVID19
September 27 :
Protecting Your Child from a Stroke
September

October 9 :
A Global Marathon:The Blood Run Marathon - SCD related organisations and company managers are encouraged to take part in this discourse and tap into a global marketing opportunity
October 25:
SCD Global Issues Survey-This discourse is intended to understand the status of the global SCD situation

November 29 :
Global SCD Annual Convention, on Zoom

December 10 :
Proposed Visit to Parliament-Making A Case for SCD (further details to be communicated)

Donate Blood


Join the campaign to mobilize blood in your country. COVID19 has had a huge toll on Blood Banks around the world and thereby causing shortages of blood for hospitals. We need to step in to mobilise blood and suggest new ideas on how to mobilize blood and equip hospitals.
Meet Olatunji Wamiri - Super Warrior
I have ventured into Wamiri SCF to advocate for people living with sickle, create more awareness and to help as many as we can whenever we are capable of.
Published by Olatunji Wamiri - 5/7/2020
Losing Omotoye Ajiboye in JSS 1 to Sickle Cell
Losing Omotoye Ajiboye in JSS 1 to Sickle Cell Disorder many years ago was devastating as a child. We attended same Primary and Secondary Schools.
Published by Oluwadaisi D. T. Olaseinde - 5/7/2020
Self-Advocacy in Sickle Cell Care
Today June 19th, we commemorate the World Sickle Cell Day across the globe as we Shine the Light on Sickle Cell Disease
Published by Sharifu K Tusuubira - 19/6/2020
Stroke in Children with Sickle Cell Disease at Age 5
Strokes are an occurrence one expects to see in older people, but in children with sickle cell disease (SCD), they occur most commonly at age 5.
Published by Stroke Center - 8/6/2020
Acute chest syndrome in children with sickle cell disease
Caused by infections and/or a blockage of blood flow to the chest and lungs, acute chest syndrome (ACS) is a complication in sickle cell patients that can...
Published by GISA News Anchor - 8/6/2020
Home care for children with sickle cell disease
Being in and out of hospital is one of the worst experiences parents of children with sickle cell suffer. However, parents should never tire from being in ho...
Published by Beatrice Nakibuuka - 8/6/2020
Leiya's Story
Sickle Cell Disease: Leiya's Story
Published by UCSF - 8/6/2020
Stem Cell Transplant
Stem Cell transplant for adult achieves treatment milestone in Canada
Published by Greg Harris - 8/6/2020
‘Adulting’ with sickle cell anemia
Transition clinics help young patients aging out of pediatric care
Published by Sandra Jordan - 8/6/2020
Sickle Cell Health Insurance
Experts advocate public health insurance for sickle cell patients
Published by Adaku Onyenucheya and Judith Muoneke - 8/6/2020
Growing With Sickle Cell Disease
Transitiong from Paediatric to Adult Care
Published by Kim Huston - 8/6/2020
New CRISPR Technology is a Ground Beaking Breakthrough for SCD
In A 1st, Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder
Published by Rob Stein - 6/6/2020
Battle of a Warrior
Holmes' Son Battles Sickle Cell Disease
Published by Barbara Barker - 6/6/2020
Sickle Cell Poll
Sickle Cell Poll Dispels Long Held Views
Published by Caribbean National Weekly - 6/6/2020
Conversations That Inspire
Conversations That Inspire Us to Think Differently
Published by Pfizer - 5/6/2020
Partnering to Uncover Sickle Cell
Partnering to Uncover Sickle Cell Disease in Sub-Saharan Africa
Published by Pfizer - 5/6/2020
A Reason to Fight
Sickle Cell Fighter has ‘Many Reasons to Smile’
Published by Carter BloodCare - 5/6/2020
Everyone with the sickle cell gene
Everyone with the sickle cell gene mutation descended from the same ancestor 7,300 years ago
Published by Sarah Wild - 5/6/2020
The SCD Burden
The burden of living with sickle cell anaemia
Published by Solomon Asaba - 5/6/2020
Coronavirus: 38-year-old SCD Warrior Lives To Tell Her Story!
Nora Molongwe, 38, had just returned from a trip to Bournemouth to receive the Inspiring Young People 2020 Award
Published by GISA News Anchor - 10/5/2020
Battling Sickle Cell Disease
Kennedy Cooper Shares Her Inspiring Story of Battling Sickle Cell Disease
Published by Jessica Bennett - 21/9/2018
New Hope for SCD
Global HOPE Initiative Plans $100M Pediatric Hematology-Oncology Treatment Network in Africa
Published by Margarida Azevedo - 13/2/2017

Spread the Word on Social Media


We encourage organizations and individuals together to collaborate with us, including SCD organizations, advocacy organizations, corporate and government entities, to use the hashtags:

#FightingSickleCellTogether | #2020GISA_AwarenessMonth | #GISA2020AwarenessMonth | #SCDWorkingTogetheri

Please tag GISA in your social media posts so we can share your events and happenings through out the year!

Share our promo and educational material

The Global SCD Convention in its maiden moment will be held on Zoom, the convention will take three days and will be held on zoom. Register through the above link to provide us with your name, email, phone number (include country code), and your country of origin. Join the Global Convention on Sickle Cell!
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The Global Initiative for Sickle Cell Anemia
Global Initiative for Sickle Cell Anemia Parliament Legislature Fund
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